Internal Reference Number: FOI_9171
Date Request Received: 16/01/2026 00:00:00
Date Request Replied To: 21/01/2026 00:00:00
This response was sent via: By Email
Request Summary: Spinal Muscular Atrophy (SMA)
Request Category: Researcher
| Question Number 1: I have a freedom of information request related to the diagnosis and treatment of Spinal Muscular Atrophy. Your answers to the following questions would be greatly appreciated. How many patients have a current diagnosis for Spinal Muscular Atrophy (ICD-10 Code G12.0, G12.1, G12.8 and G12.9) at your trust? | |
| Answer To Question 1: 22 patients | |
| Question Number 2: How many patients have been treated in the last 4 months (September to December 2025) with the following products: 鈥� Evrysdi (Risdiplam) - total patients 鈥� Spinraza (Nusinersen) - total patients 鈥� Zolgensma (Onasemnogene) - total patients 鈥� Evrysdi (Risdiplam) 鈥� new* patients 鈥� Spinraza (Nusinersen) 鈥� new* patients 鈥� Zolgensma (Onasemnogene) 鈥� new* patients *new patients are defined as patients who were not treated with any of Spinraza (Nusinersen), Evrysdi (Risdiplam) or Zolgensma (Onasemnogene) in the previous 4-month period (May to August 2025). | |
| Answer To Question 2: 0 patients | |
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Our staff at SA国际传媒 Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
