Internal Reference Number: FOI_9410
Date Request Received: 18/05/2026 00:00:00
Date Request Replied To: 18/06/2026 00:00:00
This response was sent via: By Email
Request Summary: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Request Category: Private Individuals
| Question Number 1: Service Context & Care Pathway 鈥� Does your Trust diagnose and/or treat patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)? 鈥� If yes, which clinical departments or specialties are responsible for CIDP diagnosis and management? (e.g., Neurology, Neurophysiology, Immunology, Specialist Neuromuscular Services) 鈥� Does your Trust operate a specialist neuromuscular or neuroimmunology service? If so, please provide a brief description (e.g., staffing, catchment area, referral pathways). | |
| Answer To Question 1: Does your Trust diagnose and/or treat patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)? Yes If yes, which clinical departments or specialties are responsible for CIDP diagnosis and management? (e.g., Neurology, Neurophysiology, Immunology, Specialist Neuromuscular Services) Neurology 鈥� Does your Trust operate a specialist neuromuscular or neuroimmunology service? No | |
| Question Number 2: CIDP Patient Numbers 鈥� How many patients with a confirmed diagnosis of CIDP are currently recorded within your Trust? Please provide the most recent 12 month period available. 鈥� If available, please provide the number of newly diagnosed CIDP patients in the same period. 鈥� If diagnosis data are coded, please confirm which coding system is used (e.g., ICD 10, SNOMED CT). | |
| Answer To Question 2: The coding system used is ICD 10. Please see our remaining response in the spreadsheet attached. To accompany this answer to question 2 please also see the documents listed below:  13747 - FOI_9410 - Chronic Inflammatory Demyelinating Polyneuropathy.xlsx | |
| Question Number 3: CIDP Treatment With IVIg 鈥� How many CIDP patients received intravenous immunoglobulin (IVIg) at your Trust in the most recent 12 month period? 鈥� Please provide the number of IVIg treatment episodes administered to CIDP patients in that period. 鈥� If available, please provide the total volume (grams) of IVIg used for CIDP during the same period. 鈥� How many CIDP patients received IVIg vs SCIg in the most recent 12鈥憁onth period? 鈥� If SCIg is used, please provide the number of treatment episodes and total grams administered. 鈥� If available, please provide typical dosing regimens used for CIDP (e.g., grams/kg and treatment intervals). 鈥� If recorded, please provide the average number of IVIg cycles per CIDP patient per year. | |
| Answer To Question 3: See response to question 2. No data for SCIg therefore these questions are not answered. | |
| Question Number 4: Operational & Capacity Information 鈥� Does your Trust have a formal protocol or clinical guideline for the diagnosis and management of CIDP? If yes, please provide a copy or link. 鈥� Does your Trust operate a waiting list for IVIg treatment? If yes, please provide the current number of patients waiting and the average waiting time. 鈥� Does your Trust participate in any regional or national neuromuscular networks relevant to CIDP? 鈥� Does your Trust record adverse events or complications associated with IVIg administration in CIDP patients? If yes, please provide any available summary data. | |
| Answer To Question 4: Does your Trust have a formal protocol or clinical guideline for the diagnosis and management of CIDP? IVIG panel NHS commissioning. Does your Trust operate a waiting list for IVIg treatment? Yes If yes, please provide the current number of patients waiting and the average waiting time. Not available in reportable format as would require going through individual notes, exemption applied. 鈥� Does your Trust participate in any regional or national neuromuscular networks relevant to CIDP? UHS Does your Trust record adverse events or complications associated with IVIg administration in CIDP patients? If yes, please provide any available summary data. Not available in reportable format as would require going through individual notes, exemption applied. | |
| Question Number 5: Commissioning, Governance & Funding 鈥� Which commissioning arrangements apply to CIDP treatment at your Trust? (e.g., specialised commissioning, local ICB commissioning) 鈥� Does your Trust use a prior approval or funding request process for IVIg in CIDP? 鈥� Does your Trust participate in the National Immunoglobulin Database (NID)? If yes, do you routinely submit CIDP specific data? | |
| Answer To Question 5: 5. Which commissioning arrangements apply to CIDP treatment at your Trust? NHSE Specialised Commissioning. Does your Trust use a prior approval or funding request process for IVIg in CIDP? Yes Does your Trust participate in the National Immunoglobulin Database (NID)? If yes, do you routinely submit CIDP specific data? This is available but the team do not submit | |
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