Internal Reference Number: FOI_9577
Date Request Received: 27/07/2026 00:00:00
Date Request Replied To: 12/08/2026 00:00:00
This response was sent via: By Email
Request Summary: Rare Disease Patients and Treatment
Request Category: Companies
| Question Number 1: FOI Request: Rare Disease Patients and Treatment How many total patients has the trust seen within the latest 24 months of available data (for any reason), with a recorded diagnosis of Dravet Syndrome (DS) | |
| Answer To Question 1: Please note, we are unable to provide separate answers to Q1 and Q4 as the same ICD-10 diagnosis code is used to code both diagnoses: G40.4 Other generalised epilepsy and epileptic syndromes (includes Dravet syndrome and Lennox-Gastaut syndrome) Answer <=5 | |
| Question Number 2: Of total DS patients, how many have been treated with Epidyolex (Cannabidiol) in the last 12 months? | |
| Answer To Question 2: 0 | |
| Question Number 3: Of total DS patients, how many have been treated with Fintepla (Fenfluramine) in the last 12 months? | |
| Answer To Question 3: 0 | |
| Question Number 4: How many total patients has the trust seen within the latest 24 months of available data (for any reason), with a recorded diagnosis of Lennox-Gasteau Syndrome (LGS) | |
| Answer To Question 4: Please note, we are unable to provide separate answers to Q1 and Q4 as the same ICD-10 diagnosis code is used to code both diagnoses: G40.4 Other generalised epilepsy and epileptic syndromes (includes Dravet syndrome and Lennox-Gastaut syndrome) Answer <=5 | |
| Question Number 5: Of total LGS patients, how many have been treated with Epidyolex (Cannabidiol) in the last 12 months? | |
| Answer To Question 5: 0 | |
| Question Number 6: Of total LGS patients, how many have been treated with Fintepla (Fenfluramine) in the last 12 months? | |
| Answer To Question 6: 0 | |
| Question Number 7: How many adult (aged 18+) patients has the trust seen within the latest 24 months of available data (for any reason), with a recorded diagnosis of Dravet Syndrome (DS) | |
| Answer To Question 7: Please note, we are unable to provide separate answers to Q7 and Q8 as the same ICD-10 diagnosis code is used to code both diagnoses: G40.4 Other generalised epilepsy and epileptic syndromes (includes Dravet syndrome and Lennox-Gastaut syndrome) Answer <=5 | |
| Question Number 8: How many adult (aged 18+) patients has the trust seen within the latest 24 months of available data (for any reason), with a recorded diagnosis of Lennox-Gasteau Syndrome (LGS) | |
| Answer To Question 8: Please note, we are unable to provide separate answers to Q1 and Q4 as the same ICD-10 diagnosis code is used to code both diagnoses: G40.4 Other generalised epilepsy and epileptic syndromes (includes Dravet syndrome and Lennox-Gastaut syndrome) Answer <=5 | |
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Our staff at SA国际传媒 Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
